Our fourth annual Dinner in the Dark event broke all our past records: most attendees, most money raised, and most fun ever. More than 370 guests attended Dinner in the […]
At three o’clock Thursday afternoon, Beth Chiarella and I had a very public moment of tears and hugs at Baltimore–Washington International Airport as we received news that after a day […]
Doctors diagnosed Jack McCormick in high school with Leber congenital amaurosis due to mutations in the RPE65 gene. With a mix of feelings about his diagnosis, it was when he […]
Simon Wheatcroft held his audience spellbound at the Global Genes conference in California where he detailed his journey from losing his sight as a teen-ager due to retinitis pigmentosa to […]
Enzo was born in 2014 in Lausanne, Switzerland, with a clubfoot. He immediately received physical therapy, then a plaster cast for three months and one minor surgery. His parents – […]
Sofia Sees Hope, a nonprofit focused on families living with Leber congenital amaurousis (LCA), will launch a quarterly newsletter in the fall of 2017. SSH funds research for diagnosis, [...]
Scott and Heather Soady and big sister Gillian welcomed baby Juliet two years ago, and life progressed in an understandably hectic way for the San Diego parents who also are […]
There was nothing in my life to prepare me for the experience of Dinner in the Dark. I’ve supported many nonprofits, as a board member, consultant, and donor. I’ve been […]
Birdies for Charity is a great program that we joined this year to help us raise awareness about Leber congenital amaurosis (LCA) and to help raise funds to cure LCA […]
