Thousands of scientists gathered in Denver for the annual conference of the Association for Research in Vision and Ophthalmology, known as ARVO, and, in my new role as Outreach & […]
Celebrating Connecticut Rare Disease Day 2022, Hope in Focus presented remarks Friday, February 25, 2022, to the Connecticut State Legislature on behalf of those living with Leber congenital [...]
The big news just keeps coming: fresh off the rebranding from Sofia Sees Hope to Hope in Focus, we are pleased to announce a pledge to raise $300,000 by 2025 […]
Ledyard, CT (October 19, 2021) — Sofia Sees Hope, a nonprofit that has been raising research funding and awareness around Leber congenital amaurosis (LCA) and other rare inherited retinal [...]
Sofia Sees Hope, a nonprofit patient advocacy organization dedicated to working with those affected by blindness caused by rare inherited retinal disease (IRD), is launching a monthly web series [...]
Ledyard, CT (January 13, 2021) — Sofia Sees Hope will donate $72,000 to support research into treatments for inherited retinal diseases (IRDs), including Leber congenital amaurosis (LCA), and to [...]
Sofia Sees Hope is launching a Book Club for middle school-aged kids with visual impairments. It will be moderated by Sofia Priebe, a high school senior in Connecticut for which […]
Sofia Sees Hope donated more than $100,000 at the end of 2019 to support research into treatments for inherited retinal diseases (IRDs), including Leber congenital amaurosis (LCA), and to provide [...]
This year at the sixth Dinner in the Dark on Saturday, October 19, at the Mystic Marriott Hotel & Spa, guests are being encouraged to “show their stripes!” Recognizing that […]
Ledyard, CT (June 11, 2019) — Laura Manfre of Ledyard, CT, a co-founder of Sofia Sees Hope, has been named a National Trustee by the Foundation Fighting Blindness. Sofia Sees […]
