(May 22, 2019) — Sofia Sees Hope received two grants in May from southeastern Connecticut organizations that will be used to help cover travel expenses for families to attend its […]
Sofia Sees Hope supports The Faster Treatments and Cures for Eye Diseases Act, H.R. 6421. We join Foundation Fighting Blindness (FFB), the Association for Research in Vision and Ophthalmology, [...]
A $100,000 donation from Sofia Sees Hope will support research into restoring vision for patients diagnosed with Leber congenital amaurosis (LCA). The grant will also provide access to genetic [...]
Ledyard, CT (Sept. 5, 2018) — Power of Together 2, a local crowd-funding group, raised $10,200 from 102 members to benefit Sofia Sees Hope in August. The money will be […]
Sofia Sees Hope expands scope of the dinner with its inaugural LCA Family Conference held the same weekend. Mystic, CT (Aug. 22, 2018) — Tickets are now on sale for […]
Sofia Sees Hope, a nonprofit dedicated to assisting those with Leber congenital amaurosis (LCA) and other rare inherited retinal diseases (IRDs), has received a $22,000 grant from Sanofi Genzyme, [...]
Ledyard, CT (June 19, 2018) — When local Wireless Zone franchisees Scott Gladstone and Neil Ryan decided to donate seven Samsung Galaxy 8” tablets to Sofia Sees Hope (SSH) to […]
Sofia Sees Hope has joined with dozens of other organizations representing the 30 million men, women, and children living in the United States with rare disease, to support the Rare Disease […]
Ledyard, CT (April 9, 2018) — The Community Foundation for Greater New Haven recently awarded Sofia Sees Hope a $5,000 grant to help SSH create long-term financial planning and revenue […]
In the wake of the December 2017 approval by the U.S. Food and Drug Administration of voretigene neparvovec (LUXTURNA™) to treat vision loss in patients with biallelic RPE65 mutation associated [...]
