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X-WR-CALDESC:Events for Hope in Focus
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BEGIN:VEVENT
DTSTART;TZID=UTC:20210127T130000
DTEND;TZID=UTC:20210127T140000
DTSTAMP:20260406T091241
CREATED:20210119T190952Z
LAST-MODIFIED:20210119T192501Z
UID:1366-1611752400-1611756000@old.hopeinfocus.org
SUMMARY:Webinar: Let's Chat About ... the Latest in LCA Therapy Research
DESCRIPTION:Sofia Sees Hope is proud to bring our web series “Let’s Chat About …” to the Leber congenital amaurosis and rare inherited retinal disease communities. We’ve developed the series with those living with LCA and IRDs in mind\, but we invite all members of our community\, including those in research\, industry\, and the regulatory communities to join any of the sessions\, as we look ahead to a common goal of advancing treatments for rare retinal disease. \n\nBen Shaberman\, Senior Director\, Scientific Outreach & Community Engagement\, Foundation Fighting Blindness\n\n\nLet’s Chat About … What’s in the therapy pipeline for Leber congenital amaurosis. \nBen Shaberman \nFor 16 years\, Ben has been reporting on retinal research for all of FFB’s electronic and print publications. In addition\, he presents the latest scientific advancements at local and national events for patients and families\, and conducts various training activities for staff and constituents. He enjoys working with constituents one-on-one to help them understand their retinal disease and the research underway that may benefit them. Ben also leads the company’s outreach to eye care professionals throughout the United States. \nREGISTER
URL:https://old.hopeinfocus.org/event/webinar-lets-chat-about-the-latest-in-lca-therapy-research/
CATEGORIES:Let's Chat About ...
ATTACH;FMTTYPE=image/jpeg:https://old.hopeinfocus.org/wp-content/uploads/2021/01/lets_chat_about_web_banner.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200822T190000
DTEND;TZID=UTC:20200822T203000
DTSTAMP:20260406T091242
CREATED:20200701T151608Z
LAST-MODIFIED:20200828T160408Z
UID:1176-1598122800-1598128200@old.hopeinfocus.org
SUMMARY:A Toast To Treatments: A Fundraiser to Benefit LCA and Rare IRD Treatments & Community
DESCRIPTION:REGISTER NOW\nA unique blend of history and mixology\, with two-time James Beard Award-winner and Master Mixologist Dale DeGroff\, (aka King of Cocktails). Invite a few friends\, fire up the Zoom\, and join Dale and Erik Andersson\, Eastern Region Ambassador for Hendrick’s Gin\, for “The Evolution of the Martini: From 1888 to the New Millennium.” \nJames Beard Award Winner\, Mixologist Dale DeGroff developed his techniques tending bar\, most notably at New York’s famous Rainbow Room\, where he pioneered a gourmet approach to recreating the great classic cocktails. DeGroff has since been credited with reinventing the bartending profession and setting off a cocktail revival. Author of The Essential Cocktail and The Craft of the Cocktail (Random House)\, Dale’s influence in the bar world has spanned three decades. He is a partner in the award-winning bar training program\, Beverage Alcohol Resource (BAR) and founding president of the Museum of the American Cocktail. \nYou’re welcome to mix one or more martinis along with Dale and Erik\, or sit back and sip your beverage of choice while enjoying this mixology event\, and supporting our organization. \nIncrease your support and be the first to receive a signed copy of Dale’s new book\, The New Craft of the Cocktail: Everything You Need to Know to Think Like a Master Mixologist\, with 500 recipes. Your autographed book will be shipped to you directly upon its release on September 22\, 2020 and 100% of the proceeds of this sale will be used to advance research and support free genetic testing and counseling. $70 of this contribution is tax deductible. \n  \nBuy the Book\n  \n\n\n\nREGISTER NOW\nThis event is virtual. After registering\, you will receive Zoom registration information\, and an ingredients list. Choose which of the three martinis you would like to try and purchase the ingredients ahead of time to mix right along with our presenters. \nThank you to our sponsors!
URL:https://old.hopeinfocus.org/event/a-toast-to-treatments/
CATEGORIES:fundraiser
ATTACH;FMTTYPE=image/jpeg:https://old.hopeinfocus.org/wp-content/uploads/2020/07/dale-degroff-3.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20200618
DTEND;VALUE=DATE:20200621
DTSTAMP:20260406T091242
CREATED:20200220T193954Z
LAST-MODIFIED:20200220T194157Z
UID:1090-1592438400-1592697599@old.hopeinfocus.org
SUMMARY:Visions 2020
DESCRIPTION:Join Sofia Sees Hope at VISIONS 2020\, the national conference of the Foundation Fighting Blindness\, a one-of-a-kind event in which individuals who are visually impaired\, and their families\, have the opportunity to hear about exciting advancements in blindness research. All attendees can gain practical skills for thriving with vision loss\, learn about products and services that can improve their lives\, and connect with others from across the country. \nThe program is designed specifically for individuals and families who are affected by blinding retinal diseases such as age-related macular degeneration\, retinitis pigmentosa\, Usher syndrome\, and related conditions. These diseases cause progressive blindness and affect more than 10 million Americans and millions more around the world.
URL:https://old.hopeinfocus.org/event/visions-2020/
LOCATION:Hyatt Regency Minneapolis\, 1300 Nicollet Mall\, Minneapolis\, MN\, 55403\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200426T140000
DTEND;TZID=UTC:20200426T160000
DTSTAMP:20260406T091242
CREATED:20200304T155612Z
LAST-MODIFIED:20200316T153403Z
UID:1106-1587909600-1587916800@old.hopeinfocus.org
SUMMARY:CANCELED: A Rare Opportunity: New York Times Bestselling Author Kody Keplinger
DESCRIPTION:WE HOPE TO RESCHEDULE IN THE FALL. \nSofia Sees Hope presents “A Rare Opportunity: Kody Keplinger\,” New York Times bestselling author who lives with Leber congenital amaurosis. \n \nKody Keplinger was born and raised in small town western Kentucky\, where she began her writing career after penning The New York Times bestseller\, The DUFF\, at age 17. Kody has Leber congenital amaurosis (LCA)\, a rare inherited retinal disease (IRD) that causes low vision or blindness\, typically from birth. Join us as Kody reads from her new book\, talks about her writing process and her life as a “confident and proud disabled woman\,” and signs copies of her book. \nShe is the author of nine novels\, including her newest\, LILA AND HADLEY\, about a teenage girl who is losing her vision due to retinitis pigmentosa\, another IRD. \n“A former Kentuckian and legally blind\, Keplinger knows this territory\, literal and figurative\, inside out. A funny\, moving tale\, at once unsparingly realistic and upbeat.” ~ Kirkus Reviews\n \nCome meet Guiding Eyes for the Blind of Southeastern CT guide dogs and local puppy raisers!\n  \n\nSponsors
URL:https://old.hopeinfocus.org/event/a-rare-opportunity-new-york-times-bestselling-author-kody-keplinger/
LOCATION:La Grua Center\, 32 Water Street\, Stonington\, CT\, United States
CATEGORIES:fundraiser
ATTACH;FMTTYPE=image/jpeg:https://old.hopeinfocus.org/wp-content/uploads/2020/03/kody_eventbrite_cover-copy.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200228T080000
DTEND;TZID=UTC:20200228T103000
DTSTAMP:20260406T091242
CREATED:20200221T160046Z
LAST-MODIFIED:20200221T160046Z
UID:1097-1582876800-1582885800@old.hopeinfocus.org
SUMMARY:NORD Connecticut Rare Action Network Rare Disease Day 2020
DESCRIPTION:Please join patients\, families\, caregivers\, medical professionals\, industry representatives and state legislators at this important event on Rare Disease Day to discuss the challenges rare disease patients face and learn how you can make a difference in the lives of rare disease patients and their families here in our great state of Connecticut.
URL:https://old.hopeinfocus.org/event/nord-connecticut-rare-action-network-rare-disease-day-2020/
LOCATION:Connecticut State Legislative Office Building\, 300 Capitol Avenue\, Hartford\, CT\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190726
DTEND;VALUE=DATE:20190729
DTSTAMP:20260406T091242
CREATED:20180703T123535Z
LAST-MODIFIED:20190523T151648Z
UID:487-1564099200-1564358399@old.hopeinfocus.org
SUMMARY:LCA Family Conference 2019
DESCRIPTION:Join Sofia Sees Hope for its 2nd LCA Family Conference in Philadelphia. In multiple sessions\, hear the latest in research\, treatments\, education\, and advocacy in the Leber congenital amaurosis and inherited rare disease communities. \nFamilies living with LCA or IRDs connect in a convivial atmosphere of shared stories and mutual support. \n[mk_button dimension=”flat” size=”large” url=”https://www.eiseverywhere.com/sofiaseeshope2019″ align=”center” fullwidth=”true” bg_color=”#77be43″ btn_hover_bg=”#68a83a” btn_hover_txt_color=”#ffffff”]2019 CONFERENCE INFORMATION[/mk_button]\n 
URL:https://old.hopeinfocus.org/event/lca-family-conference/
LOCATION:Warwick Rittenhouse Square\, 220 S 17TH ST\, PHILADELPHIA\, PA\, 19103\, United States
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20190703T193000
DTEND;TZID=UTC:20190703T223000
DTSTAMP:20260406T091242
CREATED:20190504T143826Z
LAST-MODIFIED:20190506T152044Z
UID:721-1562182200-1562193000@old.hopeinfocus.org
SUMMARY:New Kids On The Block: The Mixtape Tour
DESCRIPTION:NKOTB Mixtape Tour at Mohegan Sun Arena Skybox\nWednesday\, July 3\, 2019\n7:00 p.m.\nBuy Your Tickets!\nNew Kids On The Block launched their biggest tour in years in May\, and Sofia Sees Hope has scored a skybox at Mohegan Sun Arena! \nJoin us as we travel down Memory Lane on THE MIXTAPE TOUR with NKOTB and VERY special guestsSalt N Pepa\, Tiffany\, Debbie Gibson and Naughty by Nature. \nWOW… can you believe that??? \nEnjoy the concert in style with exclusive viewing access from a private skybox suite overlooking the stage. Experience the energy of the concert and feel like a VIP\, all while supporting Sofia Sees Hope and our mission to drive awareness\, support the rare inherited retinal disease community and fund research for cures and treatments for blindness. \nSKYBOX AMENITIES INCLUDE: \n\nPrivate entrance\nPrivate suite level restrooms\nSpacious seating and accommodations\nLight snacks & cash bar\nBasket raffle\n\nBuy Your Tickets!
URL:https://old.hopeinfocus.org/event/new-kids-on-the-block-the-mixtape-tour/
LOCATION:Mohegan Sun\, 1 Mohegan Sun Blvd\, Uncasville\, CT\, 06382\, United States
CATEGORIES:fundraiser
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20190330T180000
DTEND;TZID=UTC:20190330T203000
DTSTAMP:20260406T091242
CREATED:20190212T214918Z
LAST-MODIFIED:20190308T152545Z
UID:667-1553968800-1553977800@old.hopeinfocus.org
SUMMARY:A Rare Opportunity
DESCRIPTION:BUY TICKETS\n  \nPlease join us for an evening to raise awareness of rare inherited retinal disease. Join us to learn about vision lost and vision gained and issues facing those with rare disease. \nFeaturing: \n\nNicole Kear\, bestselling author of the memoir “Now I See You\,” about her diagnosis with retinitis pigmentosa.\nChristian Guardino\, Howie Mandel’s 2017 Golden Buzzer winner on America’s Got Talent\, diagnosed with Leber congenital amaurosis\, who received gene therapy to reverse vision loss.\nSofia Priebe\, sophomore at Ledyard High School who dances and rows\, diagnosed with Leber congenital amaurosis.\nDiana Owen\, Head of School at Pine Point in Stonington. She was diagnosed in her 40s with a macular hole\, a condition that results in change and loss of vision over time.\nHosted by Dr. Amy Bass\, author\, professor and lecturer\n\nTickets\n\n$100 per person\nAdd an autographed copy of “Now I See You” +$25\nAdd an exclusive “Rare Tasting” ticket and enjoy a tasting of four champagnes\, including the aptly named Rare Genisis\, Piper-Heidsieck. Courtesy of Mike Mondello and Mystic Financial Group; +$150 (only 16 available)\n\nJoin us for cocktails and appetizers before the presentation\, and dinner after the presentation. \nDoors open at 6 p.m.\, presentation and panel from 6:30-7:45 p.m. Cocktail attire. \nThank you to our generous sponsors and patrons for supporting this event. All proceeds will benefit Sofia Sees Hope’s programs to support research and patient access to genetic testing. \nPresented by:\nDominion Energy\nEditas Medicine\nBank Square Books\nSimply Majestic\nMystic Financial Group \nWe would also like to thank the following corporate supporters of Sofia Sees Hope:\nMeira GTx\nSanofi Genzyme\nSpark Therapeutics \n  \nBUY TICKETS\n\nAbout the panelists\nAt the age of 19\, Nicole Kear’s biggest concern is choosing a major in college — until she gets a life-changing diagnosis of retinitis pigmentosa. She has only a decade or so before she is blind. Kear decides to make the most of the vision she has left. She joins circus school\, tears through boyfriends\, travels the world\, and through all these hi-jinks\, she keeps her vision loss a secret. Told with humor and irreverence\, “Now I See You” is an uplifting story about refusing to cower at life’s curveballs\, about the power of love to triumph over fear. But\, at its core\, it’s a story about acceptance: facing the truths that just won’t go away\, and facing yourself\, broken parts and all. Kear will give a talk on the experiences that led to her memoir. \n  \nIn 2017\, then 17-year-old Long Island resident Christian Guardino stepped onto the America’s Got Talent audition stage\, and blew away the judges with his rendition of the Jackson 5’s “Who’s Lovin’ You.” Guardino had undergone experimental eye surgery five years ago as part of a clinical trial for a revolutionary genetic treatment for Leber congenital amaurosis with the RPE65 genetic mutation. Before surgery\, Christian had difficulty seeing even in very bright light\, having slowly lost vision since toddlerhood. \n  \nSofia Priebe is the inspiration for the founding of Sofia Sees Hope. She is a sophomore at Ledyard High School who has LCA and has progressively lost vision since early childhood. Sofia has not let that stop her\, as she pursues her academic career\, dances\, and rows crew. \n  \nDiana Owen is Head of School at Pine Point in Stonington. She was diagnosed in her 40s with a macular hole\, a condition that results in change and loss of vision over time. \n  \n  \nPanel moderator is bestselling author Dr. Amy Bass\, whose 2018 book “One Goal” was named one of the best nonfiction sports books of 2018 by The Boston Globe. \n  \n  \nBUY TICKETS
URL:https://old.hopeinfocus.org/event/a-rare-opportunity/
LOCATION:Lake of Isles\, 1 Clubhouse Dr\, North Stonington\, CT\, 06359\, United States
CATEGORIES:fundraiser
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20181209T190000
DTEND;TZID=UTC:20181209T220000
DTSTAMP:20260406T091242
CREATED:20171020T114542Z
LAST-MODIFIED:20181107T140941Z
UID:262-1544382000-1544392800@old.hopeinfocus.org
SUMMARY:A Pentatonix Christmas Tour
DESCRIPTION:A Pentatonix Christmas Tour at Mohegan Sun Arena Skybox\nSunday\, December 9\, 2018\n7:00 p.m.\nEnjoy the concert in style with exclusive viewing access from a private skybox suite overlooking the stage.  Experience the energy of the concert and feel like a VIP\, all while supporting Sofia Sees Hope and our mission to drive awareness\, support the rare inherited retinal disease community and fund research for cures and treatments for blindness. \nSKYBOX AMENITIES INCLUDE: \n\nPrivate entrance\nPrivate suite level restrooms\nSpacious seating and accommodations\nLight snacks & cash bar\nBasket raffle to support our fundraising efforts
URL:https://old.hopeinfocus.org/event/pentatonix-christmas-tour/
LOCATION:Mohegan Sun\, 1 Mohegan Sun Blvd\, Uncasville\, CT\, 06382\, United States
CATEGORIES:fundraiser
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20180621
DTEND;VALUE=DATE:20180624
DTSTAMP:20260406T091242
CREATED:20180522T125452Z
LAST-MODIFIED:20180522T125452Z
UID:467-1529539200-1529798399@old.hopeinfocus.org
SUMMARY:VISIONS 2018 National Conference
DESCRIPTION:VISIONS\, the national conference of the Foundation Fighting Blindness\, is the only event of its kind—created solely for individuals and families who are affected by retinal diseases. Find access to information on the latest retinal research and clinical trials\, the doctors performing the work\, and other families from around the country living with the same diseases. \nJune 21–23 • San Diego\, CA\nwww.blindness.org/visions
URL:https://old.hopeinfocus.org/event/visions-2018-national-conference/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20180609
DTEND;VALUE=DATE:20180610
DTSTAMP:20260406T091242
CREATED:20180522T125346Z
LAST-MODIFIED:20180522T125346Z
UID:466-1528502400-1528588799@old.hopeinfocus.org
SUMMARY:Global Genes and EveryLife Foundation for Rare Diseases RARE on the Road Rare Disease Leadership Tours
DESCRIPTION:RARE on the Road brings critical education and insights to rare disease patients\, advocates and caregivers\, while collaborating in an interactive\, engaging environment. Topics include the Patients’ Role and Drug Development\, along with breakout sessions and hands-on workshops. \nJune 9 • Houston\, TX\nJune 30 • Salt Lake City\, UT\nJuly 21 • Nashville\, TN\nglobalgenes.org/rotr2018/
URL:https://old.hopeinfocus.org/event/global-genes-and-everylife-foundation-for-rare-diseases-rare-on-the-road-rare-disease-leadership-tours/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20180524T140000
DTEND;TZID=UTC:20180524T150000
DTSTAMP:20260406T091242
CREATED:20180503T123211Z
LAST-MODIFIED:20180503T123211Z
UID:458-1527170400-1527174000@old.hopeinfocus.org
SUMMARY:Webinar: Know Your Gene
DESCRIPTION:You or someone you know has LCA\, RP or some other rare retinal disease. But do you know what your genetic mutation is? Where to go for testing and how you can access free testing? How to work with a genetic counselor? Maybe you know the exact genetic mutation – but do you know what’s next? \nJoin Sofia Sees Hope founder Laura Manfre and guests Emily Place\, Licensed Genetic Counselor at Mass Eye & Ear\, and Dr. Brian Mansfield\, deputy chief research officer for Foundation Fighting Blindness\, live on May 24\, and we’ll try to answer all your questions! \nPlease register for “Know Your Gene: The Importance of Genetic Testing in Inherited Retinal Diseases” on May 24\, 2018 2:00 PM EDT at: \nhttps://attendee.gotowebinar.com/register/1028621005694949634 \nAfter registering\, you will receive a confirmation email containing information about joining the webinar. \nBrought to you by GoToWebinar®\nWebinars Made Easy®
URL:https://old.hopeinfocus.org/event/webinar-know-your-gene/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20180228T083000
DTEND;TZID=UTC:20180228T110000
DTSTAMP:20260406T091242
CREATED:20180131T135435Z
LAST-MODIFIED:20180131T135435Z
UID:335-1519806600-1519815600@old.hopeinfocus.org
SUMMARY:CT Rare Disease Day 2018
DESCRIPTION:Connecticut Rare Disease Day Advocacy Event \nFebruary 28\, 2018 at 8:30 am \nLegislative Office Building\, 300 Capitol Avenue\, Hartford\, CT 06106\nThe goal of advocacy events is to draw attention to rare diseases as an important public health issue that cannot be ignored.  This is an opportunity for patients\, caregivers\, medical professionals and industry representatives to come together and educate elected officials about rare diseases and what it’s like to live with or care for someone with a rare disease in the state. \nEvent Host\nKristen Angell\nkangell@rarediseases.org \n 
URL:https://old.hopeinfocus.org/event/ct-rare-disease-day-2018/
LOCATION:CT Legislative Office Building\, 300 Capitol Avenue\, Hartford\, CT\, United States
ATTACH;FMTTYPE=image/png:https://old.hopeinfocus.org/wp-content/uploads/2018/01/rare-disease-day-logo.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20180227T130000
DTEND;TZID=UTC:20180227T150000
DTSTAMP:20260406T091242
CREATED:20180206T154336Z
LAST-MODIFIED:20180206T154336Z
UID:348-1519736400-1519743600@old.hopeinfocus.org
SUMMARY:2018 Rare Disease Day at Quinnipiac University
DESCRIPTION:Rare Disease Day is a global event when we raise awareness of some of the 7\,000 different rare diseases. Although each disease on its own is rare\, amazingly 1 in 10 Americans is living with a rare disease! The goal of RDD is to connect patients\, families\, caregivers\, and patient organizations; to provide opportunities for patients and parents to share their stories; and to promote education\, awareness\, and advocacy. \nSSH board member Shanda Easley and her daughter Helena\, who is currently seeking a clinical diagnosis for gradual vision loss\, will be in attendance. \nHeld in Room MNH 101 in the Frank H. Netter MD School of Medicine. \nPlease register in advance.
URL:https://old.hopeinfocus.org/event/2018-rare-disease-day-quinnipiac-university/
LOCATION:Frank H. Netter MD School of Medicine\, 370 Bassett Rd\, North Haven\, Connecticut\, 06473
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20171111T080000
DTEND;TZID=UTC:20171114T170000
DTSTAMP:20260406T091242
CREATED:20170427T125305Z
LAST-MODIFIED:20170427T125305Z
UID:65-1510387200-1510678800@old.hopeinfocus.org
SUMMARY:American Academy of Ophthalmology
DESCRIPTION:November 11-14\, New Orleans – American Academy of Ophthalmology\, thousands of people and very scientific https://www.aao.org/annual-meeting
URL:https://old.hopeinfocus.org/event/american-academy-of-ophthalmology/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20171016T080000
DTEND;TZID=UTC:20171017T170000
DTSTAMP:20260406T091242
CREATED:20170427T125234Z
LAST-MODIFIED:20170427T125234Z
UID:64-1508140800-1508259600@old.hopeinfocus.org
SUMMARY:National Organization for Rare Disorders (NORD)  annual Breakthrough Summit
DESCRIPTION:October 16-17\, Washington DC\, National Organization for Rare Disorders (NORD)  annual Breakthrough Summit – information about advocacy\, they have meetings for members\, might meet potential collaborators https://rarediseases.org/summit-overview/
URL:https://old.hopeinfocus.org/event/national-organization-for-rare-disorders-nord-annual-breakthrough-summit/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20171014T180000
DTEND;TZID=UTC:20171014T230000
DTSTAMP:20260406T091242
CREATED:20170427T125158Z
LAST-MODIFIED:20170518T180659Z
UID:63-1508004000-1508022000@old.hopeinfocus.org
SUMMARY:Dinner in the Dark
DESCRIPTION:October 14 – Dinner in the Dark \n[mk_button dimension=”flat” size=”medium” url=”https://old.hopeinfocus.org/get-involved/dinner-in-the-dark/”]LEARN MORE ABOUT THIS EVENT[/mk_button]
URL:https://old.hopeinfocus.org/event/dinner-in-the-dark/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20170914T080000
DTEND;TZID=UTC:20170915T170000
DTSTAMP:20260406T091242
CREATED:20170427T124945Z
LAST-MODIFIED:20170427T125105Z
UID:62-1505376000-1505494800@old.hopeinfocus.org
SUMMARY:Global Genes
DESCRIPTION:September 14-15\, Irvine\, California\, Global Genes – exclusively for rare disease advocacy groups \nhttp://globalgenes.cvent.com/events/2017-rare-patient-advocacy-summit/event-summary-b667f7db423b463f80ab2ef70b16b4a7.aspx
URL:https://old.hopeinfocus.org/event/global-genes/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20170811T080000
DTEND;TZID=UTC:20170815T170000
DTSTAMP:20260406T091242
CREATED:20170427T124912Z
LAST-MODIFIED:20170427T124912Z
UID:61-1502438400-1502816400@old.hopeinfocus.org
SUMMARY:American Society of Retina Specialists
DESCRIPTION:August 11-15\, Boston\, American Society of Retina Specialists – very relevant and specialized\, possibility of free day passes\, at least to the exhibit hall\, for nonprofit organizations https://www.asrs.org/annual-meeting
URL:https://old.hopeinfocus.org/event/american-society-of-retina-specialists/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20170524
DTEND;VALUE=DATE:20170619
DTSTAMP:20260406T091242
CREATED:20170524T193153Z
LAST-MODIFIED:20170525T170556Z
UID:151-1495584000-1497830399@old.hopeinfocus.org
SUMMARY:Support the LCA Community with Birdies for Charity!
DESCRIPTION:Sofia Sees Hope has joined The Travelers Championship PGA golf tournament’s Birdies for Charity program\, and we hope you will join us! Birdies for Charity is a pledge-based fundraiser. Sofia Sees Hope can earn donations based upon the number of birdies made during the 2017 Travelers Championship\, June 19-25\, 2017.  By pledging an amount per birdie\, you are helping to fund our mission of supporting the Leber congential amaurosis (LCA) and retinal disease community. \nIt’s fast and easy to pledge!  Just click here to make your pledge of an amount you’ll donate per birdie made during the course of the tournament.   With your help Sofia Sees Hope will also be eligible for additional Birdies for Charity funds through the Bonus Bucks program.  The bonus allows us to receive a 15% bonus on top of your  pledged donation. That’s 15% more funding for outreach\, education and awareness of Leber congenital amaurosis\, and for research to cure blindness caused by rare inherited retinal disease. \n \nAbout The Birdies for Charity program \nThe Birdies for Charity program provides 501(c)(3) organizations in Connecticut the opportunity to raise funds by collecting pledges based on the number of birdies made by PGA TOUR professionals during the tournament. At the conclusion of the tournament\, the Travelers Championship will multiply the number of birdies made by the pledged amounts\, and then will distribute invoices to each of our donors. For example\, if an individual makes a $.02 pledge and there are 1\,800 birdies made\, then that individual will be asked to make a donation of $36.00. The Travelers Championship will donate 100% of the proceeds to our organization. \n  \nHow Much Should I Pledge? \nBelow is a chart to show that shows how your per birdie pledge could grow.  It’s also possible to pledge a flat amount\, if you prefer.
URL:https://old.hopeinfocus.org/event/birdies-for-charity/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20170510T080000
DTEND;TZID=UTC:20170512T170000
DTSTAMP:20260406T091242
CREATED:20170427T124842Z
LAST-MODIFIED:20170427T124842Z
UID:60-1494403200-1494608400@old.hopeinfocus.org
SUMMARY:American Society of Gene and Cell Therapy
DESCRIPTION:Washington\, DC\, May 10-12\, American Society of Gene and Cell Therapy – very specific\, more corporate\, lots of therapy and research updates – they hold other events for advocacy groups\nhttp://www.asgct.org/meetings-educational-programs/asgct-annual-meetings/2017-annual-meeting
URL:https://old.hopeinfocus.org/event/american-society-of-gene-and-cell-therapy/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20170507T080000
DTEND;TZID=UTC:20170510T170000
DTSTAMP:20260406T091242
CREATED:20170427T124755Z
LAST-MODIFIED:20170427T124755Z
UID:59-1494144000-1494435600@old.hopeinfocus.org
SUMMARY:Association for Research in Vision and Ophthalmology (ARVO)
DESCRIPTION:May 7-10\, Baltimore\, Association for Research in Vision and Ophthalmology (ARVO) – thousands of doctors\, sessions are very scientific\, good opportunity to schedule networking meetings and connect with other vision-related nonprofit organizations http://www.arvo.org/AM/Default.aspx
URL:https://old.hopeinfocus.org/event/association-for-research-in-vision-and-ophthalmology-arvo/
END:VEVENT
END:VCALENDAR