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    Leber Congenital Amaurosis Leber Congenital Amaurosis Leber Congenital Amaurosis Leber Congenital Amaurosis
    • About
      • Our Story
      • Our Vision/Mission
      • Our Team
      • Hope in Focus Ambassadors
      • Pressroom
    • Living with LCA
      • What is LCA?
      • ID Your Gene
      • Clinical Trials
      • Family Connections
    • Community
      • Community News
      • Hope in Focus Podcast
      • Resources
      • Rare Retinal Disease Glossary
    • Events
      • Chef’s Menu at Cedars
      • Holiday Shop
      • Photo Gallery
    • Contact
      • Get in Touch
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    Archives

    Tag Archives for: "CRB1"
    0
    By Katherine Kraines
    In Blog
    Posted September 20, 2025

    Living with IRDs: Insights and Inspiration from the Front Lines

    The 2025 LCA Family Conference in Minneapolis, MN, offered four informational panel sessions, where the 135 attendees learned about living with Leber congenital amaurosis (LCA) and other [...]

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    0
    By Katherine Kraines
    In Blog
    Posted June 9, 2025

    FROM THE WALL: Pushing Boundaries, Building Confidence

    Throughout her 29 years, Michelle Ward Caton has embraced life with unwavering curiosity and gusto. Determined to test her abilities and not be limited by vision loss from Leber congenital […]

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    0
    By Rosanne Smyle
    In Blog
    Posted January 10, 2018

    Living with LCA: Brandon Biggs

    Brandon Biggs was diagnosed with vision loss — and ultimately with Leber congenital amaurosis (LCA) — as a toddler. His genetic mutation is LCA-CRB1, which can cause LCA, retinitis pigmentosa [...]

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    0
    By Sofia Sees Hope
    In Blog
    Posted January 10, 2018

    Being Married to Brandon: “A Precious Exercise of Mindfulness”

    By Claudia Zaghi-Biggs When I met Brandon in September 2014, I thought that I was talking to the most interesting person I had ever met. Not only was he the […]

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    0
    By Sofia Sees Hope
    In Blog
    Posted January 10, 2018

    Atom Biggs: ‘The Greatest Adventure of My Life”

    By Atom Biggs Raising a blind son has been one of the most exciting and inspiring experiences a dad can ever have. I’d like to tell you a little about […]

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    0
    By Rosanne Smyle
    In Blog
    Posted January 10, 2018

    Sonja Biggs: “My Normal and His Normal Are Just Different”

    Brandon Biggs is the chief financial officer with his mother Sonja in their company, he conducts accessibility research and he helps businesses make their software content more accessible to the [...]

    READ MORE
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