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    • About
      • Our Story
      • Our Vision/Mission
      • Our Team
      • Hope in Focus Ambassadors
      • Pressroom
    • Living with LCA
      • What is LCA?
      • ID Your Gene
      • Clinical Trials
      • Family Connections
    • Community
      • Community News
      • Hope in Focus Podcast
      • Resources
      • Rare Retinal Disease Glossary
    • Events
      • Chef’s Menu at Cedars
      • Holiday Shop
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      • Get in Touch
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    Archives

    Monthly Archive for: "April, 2023"
    0
    By Rosanne Smyle
    In News
    Posted April 21, 2023

    Hope in Focus to be Represented at World’s Largest Meeting of Eye and Vision Researchers

    Hope in Focus is pleased to announce our Director of Outreach and Development Courtney Coates will be attending the largest meeting of eye and vision researchers in the world. The […]

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    0
    By Rosanne Smyle
    In Blog
    Posted April 21, 2023

    Connecticut Rare Disease Advisory Council Begins to Take Shape

    The 13-member Connecticut Rare Disease Advisory Council (RDAC) is in the middle of its making, with the announcement of its first six members. The council will give patients, families, [...]

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    0
    By Rosanne Smyle
    In Blog
    Posted April 11, 2023

    Music Brings Together Family Living with LCA6 RPGRIP1

    Jessi Crawford fancied the clarinet when she played in her middle school band, while classmate Ted Beaman favored the trombone and guitar. Never did they dream their love of music […]

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    0
    By Rosanne Smyle
    In News
    Posted April 3, 2023

    Hope in Focus Rare Disease Day Statement to Connecticut’s Legislature

    Representatives from Hope in Focus joined Connecticut’s Rare Disease Day celebration at the Capitol in Hartford on March 23, 2023. A New England snowstorm postponed the event usually [...]

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