VISION BEYOND SIGHT: The Power of Community
It can be easy to feel alone living with an inherited retinal disease (IRD). As a kid, only one other person in my school had a visual impairment. Recently, I […]
MEET ANTHONY FERRARO: Social Media Star, Professional Athlete, Musician, and Dad Living with LCA
Prepare to be inspired by Anthony Ferraro, the featured speaker at our major fundraising event, Dinner in the Dark, on November 2, 2024, at Foxwoods Resort Casino in Mashantucket, Connecticut. [...]
LIGHT IN THE DARKNESS: From an LCA Diagnosis to Advocacy in Turkey
Toprak Kulekci is a vivacious, seven-year-old budding ballerina who lives with her parents in Ankara, Turkey. When she was born in 2017, her father, Haydar, a software engineer, and mother, […]
Théa Forms Sepul Bio to Advance RNA Therapies for LCA10 and USH2A into Clinical Trials
In December 2023, ProQR sold its sepofarsen (LCA10) and ultevursen (USH2A) programs to Théa, a large European biotechnology company focused on ophthalmology. Théa, through its new dedicated [...]
Hope in Focus Awarded a $5,000 RAREis Global Advocate Grant from Amgen
We are pleased to announce that Hope in Focus has been awarded a $5,000 grant on September 3, 2024, from Amgen through their #RAREis Global Advocate Grant prog ram. This […]