Brandon Biggs is the chief financial officer with his mother Sonja in their company, he conducts accessibility research and he helps businesses make their software content more accessible to the [...]
Preschooler Vittoria shrieks with delight as she bounds down the cobblestone way, toward the big statue of the angel riding a chariot. Later we see the almost-4-year-old, nicknamed Vicky, tossing [...]
Tami Morehouse made research history in the Leber congenital amaurosis world, and in the nation, when at age 44 she became the oldest person in a successful LCA-RPE65 genetic therapy […]
Annie Cohane takes singing lessons and piano lessons, she runs track, she’s working on swimming, and she’s a second-grader at an elementary school in Norwell, Mass. She’s 8 years […]
Our fourth annual Dinner in the Dark event broke all our past records: most attendees, most money raised, and most fun ever. More than 370 guests attended Dinner in the […]
Sofia Sees Hope Co-Founder Laura Manfre will help provide the LCA community’s perspective to a Food & Drug Administration panel Thursday about a proposed genetic therapy for Leber congenital [...]
Doctors diagnosed Jack McCormick in high school with Leber congenital amaurosis due to mutations in the RPE65 gene. With a mix of feelings about his diagnosis, it was when he […]
Sofia Sees Hope is the recipient of paperback and Kindle proceeds through October from “The Bug in Our Brain,” a new self-help book by Robert Christiansen, a friend and longtime […]
To help expand our resources to the Leber congenital amaurosis community, Sofia Sees Hope has joined the RARE Foundation Alliance of Global Genes. The RARE Foundation Alliance is a coalition of [...]
Last week Sofia Sees Hope signed on to a letter to Congress urging it to keep in place the Orphan Drug Tax Credit, which allows drug manufacturers to claim a […]
