Simon Wheatcroft held his audience spellbound at the Global Genes conference in California where he detailed his journey from losing his sight as a teen-ager due to retinitis pigmentosa to […]
To help expand our resources to the Leber congenital amaurosis community, Sofia Sees Hope has joined the RARE Foundation Alliance of Global Genes. The RARE Foundation Alliance is a coalition of [...]
Last week Sofia Sees Hope signed on to a letter to Congress urging it to keep in place the Orphan Drug Tax Credit, which allows drug manufacturers to claim a […]
Enzo was born in 2014 in Lausanne, Switzerland, with a clubfoot. He immediately received physical therapy, then a plaster cast for three months and one minor surgery. His parents – […]
Tickets are on sale for the annual culinary adventure, Dinner In the Dark, taking place Saturday, October 14, 2017 at the Mystic Marriott Hotel & Spa. Now in its fourth […]
Scott and Heather Soady and big sister Gillian welcomed baby Juliet two years ago, and life progressed in an understandably hectic way for the San Diego parents who also are […]
