Sofia Sees Hope Co-Founder Laura Manfre will help provide the LCA community’s perspective to a Food & Drug Administration panel Thursday about a proposed genetic therapy for Leber congenital [...]
Doctors diagnosed Jack McCormick in high school with Leber congenital amaurosis due to mutations in the RPE65 gene. With a mix of feelings about his diagnosis, it was when he […]
Sofia Sees Hope published Seeing Hope, its first newsletter in October, a keystone of its advocacy and outreach program for families living with Leber congenital amaurosis. “The goal of [...]
Sofia Sees Hope is the recipient of paperback and Kindle proceeds through October from “The Bug in Our Brain,” a new self-help book by Robert Christiansen, a friend and longtime […]
The Bug in Our Brain by Robert Christiansen is a new and unique perspective into self-help and personal development. While many books and programs teach about success, Christiansen found that [...]
To help expand our resources to the Leber congenital amaurosis community, Sofia Sees Hope has joined the RARE Foundation Alliance of Global Genes. The RARE Foundation Alliance is a coalition of [...]
Enzo was born in 2014 in Lausanne, Switzerland, with a clubfoot. He immediately received physical therapy, then a plaster cast for three months and one minor surgery. His parents – […]
Tickets are on sale for the annual culinary adventure, Dinner In the Dark, taking place Saturday, October 14, 2017 at the Mystic Marriott Hotel & Spa. Now in its fourth […]
Scott and Heather Soady and big sister Gillian welcomed baby Juliet two years ago, and life progressed in an understandably hectic way for the San Diego parents who also are […]
